It’s been 21 days since I posted something and for me that seems like a long time. In that time my younger sister has gotten married. I helped out with VBS, finished a baby blanket, and come to the realization that if I don’t think about Celiac and gluten it always comes to bite me in the ass. 🙂
Rebecca’s Wedding was Great! It was a lot of fun. She was super stressed and disappointed about things before the wedding but the day of she took things in stride and had a blast. She wiggled her tush when dad pronounced them husband and wife and that’s the kind of attitude she brought to the whole day. It was great!
The daddy daughter dance at the reception was one of my favorite parts. Dad has this way of dancing to make fun of himself (which other men seemed to share as the night went on) so they incorporated that into the dance. They started with “Soul Man” and finished with a sweet “My Girl.” It was great. Rebecca also danced with Grandpa.
The couple finished the night by walking out to the car through sparklers. It was a great night.
My cousin Jj Long was the photographer for the event. Be sure to check out his page: Long Photography
VBS last week wore me out. I cannot believe how exhausting it was to help out with crafts. I came home at about 1:30 each day and took at least a 2 hour nap. How do parents survive? I guess they don’t have 100+ children running around and they probably don’t work with 20 kids at a time trying to get them excited about a craft.
Ever since I went gluten free I’ve had a sort of blasé attitude. I mean as long as I don’t eat gluten I’m good right? Not really. The makeup was annoying but so are a lot of other things. We got manicures and pedicures before the wedding and my manicure was basically a polish change. No massage because I couldn’t allow them to use their lotion or oil because I couldn’t read the ingredients. I got my hair cut recently (the day of the wedding, risky I know but it worked out great) and I went to style my hair and realized I didn’t have any gluten free styling products on hand. You might be thinking, “who cares if your styling products are gluten free?” Let me ask you this question: how many times a day do you touch your hair? Do you then eat something with your hands, like a sandwich? Imagine that the stuff in your hair is covered with poison….do you really want to style your hair with poison? I didn’t think so.
The other day I was thinking about how awesome it would be to get a facial but I bet I can’t do that anymore either. They don’t exactly advertise gluten free facials. And getting a massage…what’s that going to be like? I’m sorry sir, ma’am but you can’t touch me with that lotion or oil unless I can read the ingredients first.
I ate some salsa this week that made me sick. When I went back to the jar I realized that it just said “spices” as one of the ingredients. How the hell am I supposed to know what your “spices” have in them? I’m of course asking this question because I got very sick that night and the next day.
I miss the days of getting a haircut, going out to eat, or really doing anything without thinking about gluten. I know that Celiac is one of the easier diseases to have but sometimes it really gets me down. I mean I love the weight I’ve lost and how much better I feel when I actually manage to avoid it but I would really love to get a massage without having to bring my own lotion. 😦
In my time away from blogging I’ve also gotten some more rejection letters and these ones hurt a bit more. My first rejection letter was received several weeks ago for a job I don’t even remember applying for, it was one from when I was just applying for anything. Now that I’ve narrowed my focus and only apply for jobs I actually want the rejection letters sting a bit more. They are written nicely and say nice things but they still sting a bit.
I also just this past Sunday was approached by someone with encouraging words from God. It was a great moment but it really deserves it’s own blog.
Alright, that’s all the catch up I’ve got for now. Ta-ta for now, hopefully my next blog won’t take 21 days to be posted 🙂
This past week has been gluten hell for me. I don’t like to complain about being a Celiac. 1) Because I don’t have an offical diagnosis (health insurance purposes) and 2) because as long as I avoid gluten my disease is not a problem.
I have friends and family members that are dealing with chronic illnesses and diseases that are painful and they have no way of getting away from them. They cannot get away from their pain by simply changing their diet.
That being said, I’m gonna complain now. I’m going complain about this stuff because it has been a difficult week for me because I have been unable to avoid gluten and my disease, despite my best efforts.
The first incident happened this week when I was searching for gluten free makeup. If you’re a part of my real world, you know that my sister is getting married this Saturday. Less than a week away. Since going gluten free I haven’t really had a reason to wear makeup and even when I have I haven’t gone all out. Recently (before this week) I put on the lipstick I had without thinking about it. I wore it and was sick. So I knew that I had made a mistake and needed to find gluten free makeup before the wedding.
It has my trusty list of ingredients that you should watch out in personal care products (like makeup). It’s an extensive list and if you are just beginning the journey into going gluten free, not for vanity, but for health, it can seem daunting but rest assured once you make a mistake that has you writhing in pain you’ll commit the list to memory or at least have a copy of it in your phone. The list is in the chapter titled, “Gorgeously G-Free” and starts on page 171 and continues on page 172.
Amino peptide complex
Amp-isostearoyl hydrolyzed wheat protein
Avena sativa (oat) flour
Avena sativa (oat) flour kernal
Disodium wheatgermamido PEG-2 sulfosuccinate
Hordeum vulgare (barley) extract
Hydrolyzed wheat gluten
Hydrolyzed wheat protein
Hydrolyzed wheat protein PG-propyl silanteriol
Hydrolyzed wheat starch
Hydroxpropyltrimonium hydrolyzed wheat protein
Oat beta glucan
Sodium lauroyl oat amino acids
Triticum vulgare (wheat) flour lipids
Triticum vulgare (wheat) germ extract
Triticum vulgare (wheat) germ oil
Wheat (triticum vulgare) bran extract
Wheat amino acids
Wheat bran extract
Wheat germ extracts
What germ glycerides
Wheat germ oil
Wheat germamidopropyldimonium hydroxpropyl hydrolyzed wheat protein
It’s an extensive list and can seem scary but I always look for “Wheat” first and then look for “tocopherol” or “tocopheryl acetate.” Most beauty products contain tocopherol acetate. I see those two words (that I’m not actually sure I pronounce correctly) and I put the product back on the shelf.
My problem this week came about when I was shopping for makeup. I was lucky on my first trip and PhysicansFormula had foundation and bronzer that were clearly labeled gluten free and after checking the list of ingredients was glad that it was gluten free. I also found some gluten free eye shadow, the problem came when looking for lipstick.
There is not a lipstick out on the market, even those that claim to be gluten free, that do not contain tocopheryl acetate. Not a one. The chapstick I have been using all year, Burt’s Bees, contains it, as does all other lipsticks on the market.
How can a lipstick company claim to be gluten free and list that ingredient on their box? It’s a frustration of mine, but as the consumer I have to keep a look out for myself.
The problem with that is that lipstick containers are tricky, some of them you cannot read the ingredients in the store without purchasing the product, because the ingredient list is hidden behind the packaging. The other issue is that the ingredients are impossible to read. The print is super small, so small that even my young eyes cannot read them. I needed a lipstick so I went with a couple of brands that I was assured were gluten free (through my research) and they were not. I found this out the hard way. I tried out the lipstick and had a migraine as soon as the lipstick touched my lips. Then came the cramping and by 3 am I was spending every few minutes running to the bathroom. Since I was up anyway I searched for the packing and boxes again, got out a magnifying glass and read the horrifying words, “tocopheryl acetate.” Crap! Luckily I was able to return the products but I was sick all night long and part of the next day because of this oversight on my part and horrible packaging on their part.
In the morning I contacted the customer service people of each company and asked them to make a change in their packaging. I was not asking for money but rather safer consumerism. One company (Bare…) sent me an email stating that they were not at fault for my illness. Okay, that’s not what I wanted. Sure as the consumer it’s my job to do my research, I did and was given false information on websites and forums. I also looked on their website for ingredient information and could find none. I’m not seeking money I just want them to help make my shopping experience easier. Since receiving this email I have been upset with the company whereas before I just wanted to help them make a better product. (But my anger at this company is not what this blog is about).
After returning the items, I went to Natural Grocers and got some lip tint and lip gloss that is gluten free. It said it on the packaging and I read the ingredient list 10 times (and every time I use them) before purchasing the products. I am a better consumer every time something like this happens but I’d rather not learn these lessons, I’d rather just steer clear of gluten.
The second incident happened last night. My sister had her bachelorette party and each of us bridesmaids brought a dish to share. I was about to spoon some meatballs onto my plate and asked the host what she put in them and she said what the sauce was made of. I then proceeded to eat 10 or so of those good meatballs.
Until about 2 am I didn’t think to ask how the meatballs themselves were made. I didn’t think to ask if she made them herself or if she bought them. I didn’t think to ask if the packaging said gluten free. They were good meatballs but they were not worth the horrific migraine, insane cramping, and hours upon hours of running to the bathroom. They were also not worth the muscle soreness today, the trips to the bathroom, the lethargy, and the overall painful, sucky day that this has been.
I could be mad at this bridesmaid but just like with the lipstick company I’m at fault. I’ve lived with this kind of stuff for about a year now and every mistake I make has two sides. My side as the consumer or partygoer and the side of the company or host. I’m at fault because I didn’t think to ask, I didn’t think to triple check and get out the magnifying glass before trying out the product. I didn’t think to question a so called gluten free company. I didn’t think to ask what the meatball was made of.
I will never again make these mistakes. I have thoroughly learned my lessons. The pain is horrific and I cannot wait until this passes through my system and I can get back to life. After all there is a wedding to put on!
Before I go, I have one more soap box to get on. I learned something horrifying this week, beauty products including lotions, lipsticks, hair dyes and so forth do not have to list all of their ingredients on the packaging. They can hide ingredients. So my Celiac friends if you are suddenly ill for a reason you cannot fathom consider going beauty product free for a few days and see if that solves your problems. Then reintroduce a product at a time to find the culprit.
Being Celiac is easier than some diseases out there but it has it’s hiccups and issues like anything else. There are days when I wish I could just eat a piece of cake or have a thick crust piece of pizza but then stuff like this happens and I remember that eating gluten is like poison to my system and not worth the pain.